I feel for you so much and I understand how very much you love your child and I also understand the guilt you must be feeling.
You know that your child’s stroke is not your fault but you still feel the guilt because as parents we want our children to grow up and be able to be independent when we are not around to care for them any more.
It must be very difficult to be isolated because you feel other people just don’t understand.
The only advice I can give is to try both you and your husband to get a part time job so that one of you is always with your little darling. Both of you need to get out and meet other people who are not part of the family and just be yourself – not a mother/father or a husband/wife, just yourself.
I know this might not be possible but it would be wonderful if you could both get out and feel you contribute to the financial side of the household.
I am thinking of you and I draw much inspiration from your posting. Bless you all.